Rare Kidney Disease Archives

Genetic Testing In Autosomal Dominant Polycystic Kidney Disease (ADPKD)

Printable Handouts February 3, 2023

In this presentation, the complexities of genetic testing in ADPKD, recommendations on when genetic testing is appropriate and indicated, and the various types of molecular genetic tests available will be… Read More

Hot Topics In Nephrology Episode 30: Early Education & Referral For Autosomal Dominant Polycystic Kidney Disease (ADPKD)

Audio/Podcast January 16, 2023

In this podcast, Marla Dallal, PharmD and Pranav Garimella, MD discuss the importance of early education and referral in ADPKD. Read More

Voices From The Community Episode 20 – Overview of IgA Nephropathy

Audio/Podcast December 14, 2022

In this podcast, Dr Edgar Lerma will present an overview of IgA nephropathy and a stepwise approach to identify and diagnose patients. Read More

A Look Back On 2022 Content, Themes, & Resources

Article December 5, 2022

As we approach the new year, it’s an ideal time to look back over the past year and celebrate the many developments and progress made in overcoming barriers, improving the… Read More

ADPKD Centers of Excellence Program – PKD Foundation

Printable Handouts July 15, 2022

This downloadable resource provides an overview of the PKD Foundation’s Centers of Excellence Program. Read More

On-Demand Webinar – Nephronophthisis (NPHP) & Related Rare Cystic Kidney Diseases

On-Demand Webinar February 24, 2022

Enjoy this on-demand NephU webinar where we are joined by experts, Carl Bates, MD and Rannar Airik, PhD who will describe nephronophthisis (NPHP), the most frequent genetic cause for end-stage… Read More

Infographic – Rare Disease Spotlight: Overview of IgA Nephropathy (IgAN)

Infographic February 14, 2022

This downloadable resource provides a brief overview of one of the most common rare kidney diseases to affect patients. Read More

NephU Infographic: Rare Disease Day February 2022

Infographic January 10, 2022

In February we honor Rare Disease Day. Learn more about rare kidney diseases with this helpful infographic. Read More

On-Demand Webinar – The Utility Of Clinical Genomics In Kidney Disease: International Perspectives: Part 2

On-Demand Webinar October 6, 2021

Genomics is beginning to have quite the impact in nephrology both regionally and globally. Learn more about this in this highly informative 2-part series! Read More

On-Demand Webinar – The Utility Of Clinical Genomics In Kidney Disease: International Perspectives: Part 1

On-Demand Webinar August 24, 2021

Genomics is beginning to have quite the impact in nephrology both regionally and globally. Learn more about this in this highly informative 2-part series! Read More

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