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Supporting Organization Spotlight: IgA Nephropathy Foundation

As Rare Disease Day is February 28th, the NephU community would like to raise awareness about IgA Nephropathy, a rare kidney disease.  NephU will spotlight one of their newest Supporting Organizations: The IgA Nephropathy (IgAN) Foundation.  The NephU community will invite three guests from the IgAN Foundation’s leadership team to share with us who they are, what their mission is, and what resources they provide to the IgAN community.

*Bonnie Schneider, Carrie Enicke, and Gisela Delgado are unpaid consultants of Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC). Dr Jill Green is an employee of OPDC.

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Featured Speakers
Bonnie Schneider

Bonnie Schneider

Caregiver, Director & Co-Founder

IgA Nephropathy Foundation*

Bonnie Schneider is a caregiver and director/co-founder of the IgA Nephropathy Foundation. In 2004, Bonnie’s son was diagnosed with IgAN and after finding a lack of information available and hearing that there was no ongoing research to find a cure, she quit her job in marketing and started the IgA Nephropathy Foundation with her husband, Ed.

Carrie Enicke

Carrie Enicke

Vice President of Industry Relations & Programs
    IgA Nephropathy Foundation*

Carrie is a warrior Mom who lives with her husband and daughter in North Carolina. Carrie’s 16 year old daughter has IgAN nonresponsive to treatment. It is Carrie’s mission to help change her daughter’s future as well as the patients we serve.

Gisela Delgado

Gisela Delgado

Patient

IgA Nephropathy Foundation*

Gisela Delgado was diagnosed with IgAN at the age of 14. Ultimately, it led to her kidney failure at the age of 38 requiring a kidney transplant. Fortunately, she was able to avoid dialysis and received a pre-emptive transplant from her brother. Today she wears many hats with the IgAN Foundation, but her primary focus is developing the brand to be the trusted resource for all IgAN patients and caregivers.⁠

Jill A Green

Jill A Green, PhD

Nephrology Clinical & Scientific Director
    Otsuka Pharmaceutical Development & Commercialization, Inc.*

Jill A Green, PhD, is a Senior Medical Science Liaison in the nephrology division at Otsuka Pharmaceutical Development & Commercialization, Inc. Dr Green received her PhD in biomedical sciences, with a specialization in biochemical and molecular basis of disease. She went on to hold a research scientist role at The James Comprehensive Cancer Center at The Ohio State University, specializing in oncology pre-clinical research before taking a position as a Regulatory Compliance Officer where she managed thoracic oncology clinical trials at The James Cancer Hospital.

Dr Green has been a proud member of the PKD Foundation – Columbus, OH chapter for over 12 years where she has been active in fundraising and advocacy efforts.

Location

Online