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Supporting Organization Spotlight: IgA Nephropathy Foundation
As Rare Disease Day is February 28th, the NephU community would like to raise awareness about IgA Nephropathy, a rare kidney disease. NephU will spotlight one of their newest Supporting Organizations: The IgA Nephropathy (IgAN) Foundation. The NephU community will invite three guests from the IgAN Foundation’s leadership team to share with us who they are, what their mission is, and what resources they provide to the IgAN community.
*Bonnie Schneider, Carrie Enicke, and Gisela Delgado are unpaid consultants of Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC). Dr Jill Green is an employee of OPDC.
Featured Speakers
Bonnie Schneider
Caregiver, Director & Co-FounderIgA Nephropathy Foundation*
Bonnie Schneider is a caregiver and director/co-founder of the IgA Nephropathy Foundation. In 2004, Bonnie’s son was diagnosed with IgAN and after finding a lack of information available and hearing that there was no ongoing research to find a cure, she quit her job in marketing and started the IgA Nephropathy Foundation with her husband, Ed.
Carrie Enicke
Vice President of Industry Relations & Programs-
IgA Nephropathy Foundation*
Carrie is a warrior Mom who lives with her husband and daughter in North Carolina. Carrie’s 16 year old daughter has IgAN nonresponsive to treatment. It is Carrie’s mission to help change her daughter’s future as well as the patients we serve.
Gisela Delgado
PatientIgA Nephropathy Foundation*
Gisela Delgado was diagnosed with IgAN at the age of 14. Ultimately, it led to her kidney failure at the age of 38 requiring a kidney transplant. Fortunately, she was able to avoid dialysis and received a pre-emptive transplant from her brother. Today she wears many hats with the IgAN Foundation, but her primary focus is developing the brand to be the trusted resource for all IgAN patients and caregivers.
Jill A Green, PhD
Nephrology Medical Science DirectorOtsuka Pharmaceutical Development & Commercialization, Inc.*
Jill A Green, PhD, is a Medical Science Director in the nephrology division at Otsuka Pharmaceutical Development & Commercialization, Inc. Dr Green received her PhD in biomedical sciences, with a specialization in biochemical and molecular basis of disease. She went on to hold a research scientist role at The James Comprehensive Cancer Center at The Ohio State University, specializing in oncology pre-clinical research before taking a position as a Regulatory Compliance Officer where she managed thoracic oncology clinical trials at The James Cancer Hospital.
Dr Green has been a proud member of the PKD Foundation – Columbus, Ohio chapter for over 12 years where she has been active in fundraising and advocacy efforts.
Location
Online
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NephU is supported by Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC) and Otsuka America Pharmaceutical, Inc. (OAPI) - committed supporters of the Kidney Health Community. The information provided through NephU is intended for the educational benefit of health care professionals and others who support care for those with kidney disease and other related conditions. It is not intended as, nor is it a substitute for, medical care, advice, or professional diagnosis. Health care professionals should use their independent medical judgement when reviewing NephU’s educational resources. Users seeking medical advice should consult with a health care professional. No CME or CEU credits are available through any of the resources provided by NephU. Some of the contributors may be paid consultants of OPDC and/or OAPI.©2023 Otsuka Pharmaceutical Development & Commercialization, Inc. All rights reserved. - Events
