- Home
- About
- About NephU
- Meet The Team
- Supporting Organizations
- Community Advisors
- Contact Us
- Diversity, Equity, & Inclusion
- Events
- Resource Center
- Rare Kidney Diseases (PKD, IgAN, & Others)
- Kidney Disease & Mental Health
- Kidney Disease & Comorbid Conditions
- Transplantation & Dialysis
- NephU Nutrition & The NephChefTM
- On Demand Webinars
- Infographics
- Podcasts
- Videos
- Request A Presentation
- ADPKD Simulator
- Patient Resources
- Log In
- Join
- Log Out
- Account
Archives
American Kidney Fund’s Undiagnosed Causes Of Kidney Disease Initiative
Thank you for attending, we hope you enjoyed this webinar.
Please tell us what you thought about today’s presentation by taking the survey below:
About This Event
American Kidney Fund’s Undiagnosed Causes Of Kidney Disease Initiative
Background
- Patients that do not have a definitive cause of their kidney disease may face many barriers or receive suboptimal care during their medical journey. The American Kidney Fund’s (AKF) Undiagnosed Causes of Kidney Disease Initiative seeks to improve the understanding of how undiagnosed or misdiagnosed causes of kidney disease directly impact patient care and outcomes, as well as gain insights of the patient journey to a rare kidney disease diagnosis.
- From a survey conducted by the AKF, the most commonly cited known cause of kidney disease was a history of high blood pressure, followed by history of diabetes. Only 6% had a diagnosed rare disease, while 27% had no known cause. Other cited causes included medications and cancer.
- This webinar with the AKF will help promote meaningful, systemic change to ensure that patients with kidney disease get the diagnosis they need and the care they deserve. Overcoming barriers to identifying the root cause of kidney disease for currently unknown reasons, will not be accomplished quickly. However, thoughtful, dedicated collaboration among the kidney care community can result in steady progress toward expanding access to genetic testing, reducing systemic inequalities, engaging providers, and empowering patients.
- Insight into the American Kidney Fund’s the Undiagnosed Causes of Kidney Disease (UCKD) initiative.
- Preliminary data from survey conducted with HCPs to better understand when and how patients are being diagnosed (eg Primary Care, Referred to Nephrology, Etc).
- Tools and action steps for healthcare providers to learn more, such as the Unknown Causes of Kidney Disease Project roadmap to promote meaningful, systemic change to ensure that patients with kidney disease get the diagnosis they need and the care they deserve.
Featuring
Michael Spigler
VP of Patient Support and EducationAmerican Kidney Fund*
Mr Spigler has served as vice president of Patient Services and Kidney Disease Education for the American Kidney Fund (AKF) since July 2015. He oversees a spectrum of programs and services: prevention activities, top-rated health educational resources, and direct financial assistance that enables kidney patients to access lifesaving medical care, including dialysis and transplantation. Mr Spigler has more than 20 years of experience in creating and managing health education programs for a multitude of chronic health conditions, including kidney disease, cancer, food allergies and anxiety disorders. In 2011, he was among the first group of health educators named Master Certified Health Education Specialists by the National Commission for Health Education Credentialing.
Max Hyams, PharmD, RPh
Nephrology Clinical & Scientific LiaisonOtsuka Pharmaceutical Development & Commercialization, Inc.*
Max Hyams, PharmD, RPh, is a Nephrology Clinical & Scientific Liaison at Otsuka Pharmaceutical Development & Commercialization (OPDC) covering New Jersey. He earned his Doctorate of Pharmacy from Albany College of Pharmacy and Health Sciences in Albany, New York. Prior to joining Otsuka, he was a Global Pharmacovigilance Case Processor in Specialty Medicine at Bayer, working closely with colleagues in Brazil and Germany. Prior to that, he was a Pharmacy Manager for CVS, working in the highest volume, 24-hour stores in Northern New Jersey, and has experience working for an independent pharmacy specializing in fertility medications. He is currently licensed as a pharmacist in New Jersey and resides in Hoboken, New Jersey.
*Michael Spigler is a paid consultant of Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC). Dr Max Hyams is an employee of OPDC.
Registration
Please Log In Or Join to Register for this Event.
Related Resources
-
Feelings Of Loneliness Doubled The Risk Of Developing Type 2 Diabetes
Article March 22, 2023This article reviews a study researching degrees of loneliness and its relation to the development of type 2 diabetes.
-
Voices From The Community Episode 23 – Housing Insecurity & Disparities In Kidney Disease
Audio/Podcast March 22, 2023NephU hosts Dr. Debra Hain as she discusses housing insecurity challenges and concerns kidney disease patients.
-
Hyponatremia: Being Mindful Of Fall Risks
Article March 13, 2023Elderly patients who suffer a hip fracture from a fall face a 13.5% increased risk of death within six months and a 24% increased risk of death within the first-year…
Related Events
-
American Kidney Fund’s Undiagnosed Causes Of Kidney Disease Initiative
March 28 from 12:00 pm to 1:00 pm -
Mental Health Implications In Patients With End-Stage Kidney Disease
April 19 from 1:00 pm to 2:00 pm -
Kidney Healthy Cooking Series Featuring Celebrity Chef JJ: Episode 2
April 25 from 12:00 pm to 1:00 pm
Join Today for Instant Access to all NephU Offerings.
Membership is free!
Join NephU today at no cost to register for this event and access to other premium content.
- The NephU Community is collaborating to improve care and the future outcomes for individuals with kidney disease and other related conditions.
- Quickly learn more about the topics that interest you.
- Access our library of on-demand kidney health resources
- Gain key insights from industry experts & though leaders.
NephU is supported by Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC) and Otsuka America Pharmaceutical, Inc. (OAPI) - committed supporters of the Kidney Health Community. The information provided through NephU is intended for the educational benefit of health care professionals and others who support care for those with kidney disease and other related conditions. It is not intended as, nor is it a substitute for, medical care, advice, or professional diagnosis. Health care professionals should use their independent medical judgement when reviewing NephU’s educational resources. Users seeking medical advice should consult with a health care professional. No CME or CEU credits are available through any of the resources provided by NephU. Some of the contributors may be paid consultants of OPDC and/or OAPI.©2023 Otsuka Pharmaceutical Development & Commercialization, Inc. All rights reserved.