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A Panel Discussion: Promoting Awareness Of Rare Kidney Diseases With A Focus On Autosomal Dominant Polycystic Kidney Disease (ADPKD) & IgA Nephropathy (IgAN)
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About This Event
A Panel Discussion: Promoting Awareness Of Rare Kidney Diseases With A Focus On Autosomal Dominant Polycystic Kidney Disease (ADPKD) & IgA Nephropathy (IgAN)
Background An estimated 300 million people around the world live with a rare disease1. About 25-30 million Americans are affected by rare diseases1. There are around 150 different rare kidney diseases; two of the most common are Autosomal Dominant Polycystic Kidney Disease and IgA Nephropathy1. Both rare kidney diseases progress through a person’s lifetime, ultimately leading to kidney damage2,3. If left unmanaged, the damage occurring to the kidney may be substantial enough to result in kidney failure2,3.
Did You Know?
- Since its creation in 2008, Rare Disease Day is observed every year on the last day of February (the 29th on leap years – the rarest day of the year)
- Glomerular disease (e.g. IgAN) and ADPKD are the 3rd and 4th leading causes of end stage kidney disease, respectively, behind diabetes and hypertension2
- Learn from our panel discussion, where experts discuss their passion for ADPKD and IgAN and how the entire kidney community can rally around Rare Disease Day to raise awareness about these rare kidney diseases.
- Prevalence of rare diseases
- Epidemiology of ADPKD and IgAN
- Impact on patients and caregivers
- NephU_Rare Disease Day_2021 Infographic – MRC2.CORP_.X.05794
- NephU_Overview of ADPKD Deck – MRC2.CDR.D.00077
- NephU_Overview of IgAN_2022 Infographic – US.CORP.X.22.00054
Featuring
Joshua Lipschutz, MD
Professor of Medicine, Renal Division Director, and the Arthur Williams Chair in NephrologyMedical University, South Carolina*
Dr Lipschutz completed his undergraduate studies, medical school, and residency at Indiana University. He then went on to complete his Nephrology Fellowship at the University of California, San Francisco (UCSF). After his medical training, Dr Lipschutz successfully established an internationally recognized independent research program that better explained the etiology of polycystic kidney disease at the University of Pennsylvania. This work and much more has been published in over 80 scientific manuscripts and has been supported by multiple grants from the National Institutes of Health, Veterans Affairs, and private foundations.
In 2014, Dr Lipschutz took a Professor of Medicine position at the Medical University of South Carolina where he also serves as the Director of the Renal Division and the Arthur Williams Chair in Nephrology. Finally, Dr Lipschutz selflessly serves his country and is a Colonel in the South Carolina Army National Guard.
Shayan Shirazian, MD
Associate Professor of Medicine, Division of NephrologyColumbia University Medical Center*
Dr Shirazian received his undergraduate and medical degrees from Brown University and did his internal medicine residency and nephrology fellowship at the Columbia University Irving Medical Center. He spent 7 years at NYU-Winthrop Hospital where he was the fellowship program director and the director of nephrology clinical trials before being recruited back to Columbia. He is currently an associate professor of medicine in nephrology and a director of home dialysis at Columbia.
His research aims to test, and implement, interventions to improve quality of life and self-care in patients with chronic kidney disease (CKD) and end stage renal disease. To this end, he has been the principal investigator on several investigator-initiated grant-funded studies in this area. He has over 45 peer reviewed publications, and serves on the editorial board of BMC Nephrology and as the social media editor for Kidney International.
Moderator
Josh Gariboldi, PharmD, BCPS
Nephrology Senior Medical Science LiaisonOtsuka Pharmaceutical Development & Commercialization, Inc.*
Josh Gariboldi, PharmD, BCPS joined Otsuka in January 2021 and is a Medical Science Liaison on our Nephrology East Team, covering the Carolinas and Tennessee. Dr Gariboldi earned his Doctor of Pharmacy degree from the University of Florida in 2012. He has more than eight years of experience as a clinical pharmacist in both the community and hospital settings, most recently at Bon Secours Mercy Health St. Francis Hospital in Greenville, SC. Dr Gariboldi served as a preceptor with Presbyterian College School of Pharmacy, where he instructed students on Advanced Pharmacy Practice rotations. He holds board certifications in both pharmacotherapy and medical affairs.
Hannah N. Lambert, PharmD
Nephrology Medical Science LiaisonOtsuka Pharmaceutical Development & Commercialization, Inc.*
Hannah N. Lambert is a Medical Science Liaison at Otsuka Pharmaceutical Development and Commercialization. She earned her Doctor of Pharmacy and completed her clinical residency training at Xavier University of Louisiana College of Pharmacy in New Orleans, LA. Prior to joining Otsuka, Dr Lambert was a clinical pharmacist at Ochsner Health in Digital Medicine.
*Drs Joshua Lipschutz & Shayan Shirazian are paid consultants of Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC). Drs Josh Gariboldi & Hannah Lambert are employees of OPDC.
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NephU is supported by Otsuka Pharmaceutical Development & Commercialization, Inc. (OPDC) and Otsuka America Pharmaceutical, Inc. (OAPI) - committed supporters of the Kidney Health Community. The information provided through NephU is intended for the educational benefit of health care professionals and others who support care for those with kidney disease and other related conditions. It is not intended as, nor is it a substitute for, medical care, advice, or professional diagnosis. Health care professionals should use their independent medical judgement when reviewing NephU’s educational resources. Users seeking medical advice should consult with a health care professional. No CME or CEU credits are available through any of the resources provided by NephU. Some of the contributors may be paid consultants of OPDC and/or OAPI.©2024 Otsuka Pharmaceutical Development & Commercialization, Inc. All rights reserved.