Supporting Organizations

Become a Supporting Organization and stand with us as we aim to improve future outcomes for individuals with kidney disease and other related conditions…together.

NephU actively collaborates with our Supporting Organizations to develop resources, programs, and events. We’d love to hear from, and work with you!

Please use the contact form below or download the Supporting Organization Agreement to get started.

  • 75 words or less
Kidney Donor Conversations logo
Kidney Donor Conversations logo

Kidney Donor Conversations

Kidney Donor Conversations (KDC) is a 501(c)(3) nonprofit organization with a mission to provide education and support for living kidney donation. Other organizations attempt to find kidneys through the recipient or registering to be an organ donor. But to find enough kidneys for everyone on the kidney transplant waiting list, we must also discover living donors from the general population. Contact KDC for information regarding online presentations, personal support, and resources about the facts, benefits, and process of living kidney donation.

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Empower PKD logo
Empower PKD logo

Empower PKD

Polycystic kidney disease (PKD) is a rare genetic disease that causes permanent worsening in kidney function. PKD is the most common genetic cause of chronic kidney disease. We initiated “Establishing Meaningful Patient-centered Outcomes With Relevance for patients with PKD” (EMPOWER PKD) with PCORI funding to engage patients with PKD to learn about patient concerns regarding: PKD impact, patient-centered health outcomes, insurability (health and life insurance), and patients’ activation and engagement. We aim to establish patient centered outcomes that are based on the shared priorities of patients with PKD, their families, healthcare providers, researchers and other stakeholders. To do that, we utilized semi-structured focus groups with a pre-piloted guide which allow for conversational flow and consistency. During each focus group, participants used a nominal, multi-voting technique to vote for outcomes which are important to them. We have conducted so far eight focus groups with seven to eleven patients and caregivers, and one group with eight clinical and research experts, each lasting two hours. EMPOWER PKD is bringing together patients with PKD and their families, advocacy groups, researchers, clinical experts, nurses and care coordinators to define patient centered outcomes that are of greatest importance to be assessed in PKD studies. EMPOWER PKD will help shape future research agendas with a focus on the PKD patients and families and their experience.

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Open Minds logo
Open Minds logo

Open Minds

OPEN MINDS is the premier market intelligence and management support firm specializing in the sectors of the health and human service field serving consumers with chronic conditions and complex support needs. The mission of OPEN MINDS is to provide health and human service payers and provider organizations – and the organizations that serve them – with the market and management knowledge needed to improve their organizational efficiency and effectiveness.

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IKONA Health logo
IKONA Health logo

IKONA Health

IKONA offers a smarter way for kidney care providers to deliver effective and measurable learning experiences to their patients and staff. Our platform uses learning science, storytelling and immersive technology to address education and training challenges, dramatically improve patient understanding and ensure confident treatment decisions. Together with leading care providers across the country, we are reinventing learning in kidney care, one experience at a time.

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National Association of Nephrology Technicians/Technologists logo
National Association of Nephrology Technicians/Technologists logo

National Association of Nephrology Technicians/Technologists

NANT promotes education and advances the professional role of the multidisciplinary team in delivering the highest quality of care to the chronic kidney disease (CKD) patient. It provides educational opportunities, represents the nephrology technology professionals in the regulatory and legislative arena, encourages the development of nephrology professionals in leadership roles, and achieves recognition for the contribution of the nephrology technology practitioners to the total care of the CKD patient.

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American Nephrology Nurses Association (ANNA) logo
American Nephrology Nurses Association (ANNA) logo

American Nephrology Nurses Association (ANNA)

The American Nephrology Nurses Association improves members' lives through education, advocacy, networking, and science. Since it was established as a nonprofit organization in 1969, ANNA has been serving members who span the nephrology nursing spectrum. ANNA has a membership of over 8,500 registered nurses and other health care professionals at all levels of practice. Members work in such areas as conservative management, peritoneal dialysis, hemodialysis, continuous renal replacement therapies, transplantation, industry, and government/regulatory agencies. ANNA is committed to advancing the nephrology nursing specialty and nurturing every ANNA member. We achieve these goals by providing the highest quality educational products, programs, and services. Our members are leaders who advocate for patients, mentor each other, and lobby legislators, all to inspire excellence.

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